Tuesday, August 20, 2013

My Life with PH + Lupus



by Stacey Gausling

I have two children named Lupus and PAH. Lupus is 14 years old and PAH is 7. Lupus tends to be on the quiet side but when she gets upset, she confuses everyone. PAH came into my world with forceful energy. She demanded so much attention that I was wiped out like never before. Her tantrums were so bad in the beginning. She requires a lot of daily care and has her special “buddy” that has to be with her at all times, ever since she turned 2. I have to carry her “buddy” in my purse or a fanny pack 24/7. She also requires a special diet and I can’t run too far without her tugging at me wanting attention.  On top of that, I am trying to be a super mom and working full time. 


Last year, Lupus got tired of all the attention that PAH was getting and decided it was her turn. She threw a major tantrum and accidentally kicked me in the kidneys. Then she got involved with a bad influence named Anemia which got so bad that it did a number on my blood pressure.  I had to take a one week vacation at La Resort Hospital to get over that one! Well, PAH was having none of that. She demanded to have a makeover for her “buddy” which required another one week stay at La Resort.


As a parent of a teen and an adolescent, I am challenged daily with these 2. The level of care is more that I would have ever imagined, but it gets easier with each year. I am looking forward to seeing them in their 20’s and hopefully they will find their own lives and leave the nest. 

2 comments:

  1. Stacey, while I don't like the fact that you have PAH and Lupus, I like how you wrote about it! Thanks for sharing your story, and I hope your "kids" can behave from now on!!

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  2. You are a very talented young woman! Thank you for sharing your experience with your two, at times, unruly children. I wish you the best on your journey. Gentle hugs to you!

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